CHILDREN with rare chromosomal disorders can be helped when families attend the Australian Rare Chromosome Awareness Network (ARCAN) gala on October 12.
ARCAN is assisting more than 500 Sydney families.
A network member Eva Pym, 3, of Kellyville, is the only known person in the world with a "6q23-25 deletion".
She sees 14 specialists regularly for heart, speech and developmental problems.
Her mother Katherine Pym said before joining the network she felt "very alone".
"This group celebrates small achievements and they've changed my whole journey," she said.
Northmead resident Lauren Huxley, who survived a violent attack in 2005 and had to learn to walk, talk and eat again, has accepted the role of ambassador of the network.
ARCAN president Patricia Jonas said Miss Huxley's journey parallels that of children born with a chromosomal disorder.
■ The ARCAN gala dinner is on October 12 at the Novotel Parramatta, 350 Church Street. Tickets cost $110 and include a three-course dinner with drinks and entertainment. Bookings: arcan.org.au.