Bikram Yoga Northwest is organising a charity walk to raise funds for Eva Pym, of Kellyville.
When Eva, 3, was born, genetic testing revealed she had a 6q23.5 -25.1 deletion — possibly the only person in the world with this.
Characteristics of this are small size, heart problems and developmental delay.
Click here to watch a video of little Eva with mum Katherine, shot by videographer Carlos Furtado in March, 2013, when the News first met Eva.
Enjoy a sausage sizzle and 11-kilometre walk on Sunday at Lane Cove Park.